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Validation of the Hungarian version of the CarerQol instrument in informal caregivers: results from a cross‑sectional survey among the general population in Hungary

Baji, Petra and Brouwer, Werner B. F. and Exel, Job van and Golicki, Dominik and Prevolnik Rupel, Valentina and Zrubka, Zsombor and Gulácsi, László and Brodszky, Valentin and Rencz, Fanni and Péntek, Márta (2020) Validation of the Hungarian version of the CarerQol instrument in informal caregivers: results from a cross‑sectional survey among the general population in Hungary. Quality of Life Research . DOI https://doi.org/10.1007/s11136-020-02662-8

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Official URL: https://doi.org/10.1007/s11136-020-02662-8

A nyílt hozzáférést az EISZ és a kiadó között létrejött "Read and Publish" szerződés biztosította. Open access was provided "Read and Publish" contract between EIS and the publisher.

Abstract

Purpose The CarerQol instrument has been designed and validated as an instrument able to measure both the positive and the negative impacts of caregiving on the quality of life of informal caregivers (CarerQol-7D), as well as their general happiness (CarerQol-VAS). The aim of this study was to assess the construct validity of the CarerQol in the Hungarian context. Methods The CarerQol was translated into Hungarian. Subsequently, in a cross-sectional online survey, representative for the general Hungarian population (N=1000), informal caregivers were identifed (N=149, female 51.2%, mean age 53.2). Clinical, convergent and discriminant validity of the CarerQol were evaluated in relation to the caregivers’ and care recipients’ EQ-5D-5L health status, and caregiving situation characteristics. Results Average CarerQol-7D and CarerQol-VAS scores were 76.0 (SD 16.2) and 6.8 (SD 2.3), respectively. CarerQol-7D and CarerQol-VAS scores were signifcantly correlated with caregiving time (r=−0.257; −0.212), caregivers’ EQ-5D-5L scores (r=0.453; 0.326) and the CarerQol-7D also with care recipients’ EQ-5D-5L scores (r=0.247). CarerQol-7D scores difered signifcantly with relevant caregiving characteristics (e.g. nature and severity of care recipients’ health status, sharing household) and both the CarerQol-7D and CarerQol-VAS with the overall care experience. Conclusion Our fndings confrmed the validity of the Hungarian language version of the CarerQol and support the crosscultural validity of the instrument. CarerQol-7D scores performed better in distinguishing caregiving situation characteristics than the general happiness measure CarerQol-VAS. Care recipients’ health status was only weakly associated with informal caregivers’ care-related quality of life and happiness. Caregivers’ own health and caregiving circumstances were more strongly associated with these scores.

Item Type:Article
Uncontrolled Keywords:informal care, Burden, validation, CarerQol, EQ-5D-5L
Subjects:General statistics
Social welfare, insurance, health care
DOI:https://doi.org/10.1007/s11136-020-02662-8
ID Code:6103
Deposited By: Veronika Vitéz
Deposited On:26 Nov 2020 17:03
Last Modified:27 Nov 2020 14:25

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