The burden of informal caregiving in Hungary, Poland and Slovenia: results from national representative surveys

Baji, Petra, Golicki, Dominik, Prevolnik‑Rupel, Valentina, Brouwer, Werner B. F., Zrubka, Zsombor, Gulácsi, László and Péntek, Márta (2019) The burden of informal caregiving in Hungary, Poland and Slovenia: results from national representative surveys. The European Journal of Health Economics, 2019 (20). S5-S16. DOI

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Background We aimed to investigate the burden of informal care in Hungary (HU), Poland (PL) and Slovenia (SI). Methods A cross-sectional online survey was performed involving representative samples of 1000 respondents per country. Caregiving situations were explored; health status of informal caregivers/care recipients and care-related quality of life were assessed using the EQ-5D-5L and CarerQol-7D. Results The proportion of caregivers was (HU/PL/SI) 14.9, 15.0 and 9.6%, respectively. Their mean age was 56.1, 45.6 and 48.0, and the average time spent on informal care was 27.6, 35.5 and 28.8 h/week. Chronic care was dominant (> 1 year: 78.5%, 72.0%, 74.0%) and care recipients were mainly (own/in-law) parents. Average EQ-5D-5L scores of care recipients were 0.53, 0.49 and 0.52. For Poland and Slovenia, EQ-5D-5L scores of informal care providers were signifcantly lower than of other respondents. Average CarerQol-7D scores were (HU/PL/SI) 76.0, 69.6 and 70.9, and CarerQol-VAS was 6.8, 6.4 and 6.6, respectively. Overall, 89, 87, and 84% of caregivers felt some or a lot fulflment related to caring. Problems with combining tasks with daily activities were most important in Hungary and Slovenia. Women had a higher probability of being a caregiver in Hungary. CarerQol-7D scores were signifcantly associated with caregivers’ EQ-5D-5L scores. In Hungary and Poland, living in a larger household was positively, while caring for patients with mental health problems was negatively associated with CarerQol-7D scores. Conclusions These frst results from the Central and Eastern European region using preference-based measures for the evaluation of informal care can serve as a valuable input for health economic analyses.

Item Type:Article
Uncontrolled Keywords:informal care, quality of life, carerQol, EQ-5D-5L
JEL classification:I19 - Health: Other
Subjects:Social welfare, insurance, health care
ID Code:5323
Deposited By: Veronika Vitéz
Deposited On:06 Apr 2020 15:22
Last Modified:06 Apr 2020 15:22

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